Patients on the Move

In this inspiring episode, host Roger Legtenberg welcomes Kirsty Cullen, Chief Executive of the Optimum Health Clinic in London, UK, who is passionate about raising awareness about complex fatigue-related illness and the integrative approach developed to optimize care.

What to Expect in This Episode:

- The daily struggles of living with complex fatigue-related illnesses, the biggest hurdles in care and how patient involvement can help overcome them

- How the Optimum Health Clinic is shaping better patient-centered care

- Current gaps in patient-relevant care and how they can be addressed looking ahead in the future

Join us for this insightful...

In this inspiring episode, host Roger Legtenberg welcomes Trish Bartley, a true pioneer in bringing mindfulness to people with cancer. Since 2001, Trish has taught mindfulness, authored several influential books, and is recognized as a leading authority on mindfulness for people with cancer across Europe and beyond.

What to Expect in This Episode:
- Discover what inspired Trish to dedicate her work to mindfulness for people with cancer.
- Gain insights through real-life examples of how mindfulness can make a tangible difference in the lives of people living with cancer.
- Learn about her recent global initiative to make mindfulness...

In this 8th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Jennifer MacDonald, an Alpha-1 Antitrypsin Deficiency (AATD) patient ambassador from Mexico for Fundacion LovexAir, who is passionate about raising awareness of rare diseases in general and in particular for Alpha-1 AATD in Mexico, the Caribbean, and Latin America.

Join this impactful conversation as they delve into Jennifer's personal journey, including all the struggles to be adequately treated in Mexico. Also, the needs and future outlook for improving healthcare & raising awareness in the region of, in particular, rare diseases, and the important role...

In this 7th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Pisana Ferrari, a well recognised pulmonary hypertension patient advocate from Italy, who started her advocacy work back in 2001 founding the Italian PH patient association AIPI and founding the European Federation for PH PHA Europe. Join this impactful conversation as they delve into what has been achieved in PH, what is still needed, the reasons for recently launched Alliance for Pulmonary Hypertension and the future role of patient engagement should play in the field.